Living Life with Congenital Central Hypoventilation Syndrome
There are more than 6000 rare diseases in the world, and approximately 1 in 2000 people have been diagnosed with one. Every person and family affected by rare disease is different in its own way, but we all share the same problem: we are “rare,” and often even the medical community doesn’t know what to make of our diagnosis.
Original Article Source Credits: Complex Child , https://complexchild.org/
Article Written By: SHELLEY COLQUITT
Original Article Posted on: NA
Link to Original Article: https://complexchild.org/articles/2012-articles/september/life-with-cchs/