*A Light exists in Spring Not present on the Year At any other period — When March is scarcely here A Color stands abroad On Solitary Fields That Science cannot overtake But Human Nature feels. * - from "A Light Exists in Spring" by Emily Dickinson
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A Light Exists in Spring - by Emily Dickinson
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When Summer Makes You Sick: Dealing with Severe Heat Intolerance
Original Article Source Credits: Complex Child, https://complexchild.org
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://complexchild.org/articles/2015-articles/july/heat-intolerance
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Placing an Oximeter Probe on Your Childs Finger or Toe (Cómo colocar una sonda de oxímetro)
Original Article Source Credits: pediatric home service, https://www.pediatrichomeservice.com
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://www.pediatrichomeservice.com/tips-how-tos/placing-an-oximeter-probe-on-your-childs-finger-or-toe/?play=1
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Fragile X syndrome
Original Article Source Credits: NIH, https://rarediseases.info.nih.gov
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://rarediseases.info.nih.gov/diseases/6464/fragile-x-syndrome
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Keeping Feeding Tube Extensions Clean (Cómo mantener limpias las extensiones de las sondas de alimentación)
Original Article Source Credits: pediatric home service, https://www.pediatrichomeservice.com
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://www.pediatrichomeservice.com/tips-how-tos/keeping-feeding-tube-extensions-clean/?play=1
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Ensuring the Continuity of Research to Improve Children's Lives Amidst the Unexpected
Original Article Source Credits: Seattle Childrens, https://pulse.seattlechildrens.org
Article Written By: ELIZABETH DIMARCO
Original Article Posted on: MAY 6, 2021
Link to Original Article: https://pulse.seattlechildrens.org/ensuring-the-continuity-of-research-to-improve-childrens-lives-amidst-the-unexpected
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Homocystinuria due to CBS deficiency
Original Article Source Credits: NIH, https://rarediseases.info.nih.gov
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://rarediseases.info.nih.gov/diseases/6667/homocystinuria-due-to-cbs-deficiency
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Acute cholinergic dysautonomia
Original Article Source Credits: Genetic and Rare Diseases Information Center ,https://rarediseases.info.nih.gov/
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://rarediseases.info.nih.gov/diseases/9394/acute-cholinergic-dysautonomia
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Transition: Planning for the Future
Original Article Source Credits: Complex Child , http://complexchild.org/
Article Written By: LINDA JORGENSEN
Original Article Posted on: NA
Link to Original Article: http://complexchild.org/articles/2012-articles/september/transition-planning/
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Neonatal hemochromatosis
Original Article Source Credits: Genetic and Rare Diseases Information Center ,https://rarediseases.info.nih.gov/
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://rarediseases.info.nih.gov/diseases/7172/neonatal-hemochromatosis
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Transient neonatal diabetes mellitus
Original Article Source Credits: Genetic and Rare Diseases Information Center ,https://rarediseases.info.nih.gov/
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://rarediseases.info.nih.gov/diseases/1839/transient-neonatal-diabetes-mellitus
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Clog Zapper
Original Article Source Credits: Pediatric Home Service , https://www.pediatrichomeservice.com/
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://www.pediatrichomeservice.com/tips-how-tos/clog-zapper/?play=1
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Gaucher disease perinatal lethal
Original Article Source Credits: National Institutes of Health , https://rarediseases.info.nih.gov/
Article Written By: NA
Original Article Posted on: 1/1/2021
Link to Original Article: https://rarediseases.info.nih.gov/diseases/10675/gaucher-disease-perinatal-lethal
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Seizures During Sleep: One Boys Journey with CSWS Epilepsy
Original Article Source Credits: Complex Child , https://complexchild.org/
Article Written By: VINEZ CAMPBELL
Original Article Posted on: NA
Link to Original Article: https://complexchild.org/articles/2016-articles/november/csws-epilepsy/
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Dr. Markus Boos Discusses Rashes: What is Normal and When to Worry
Original Article Source Credits: Seattle Children's , https://pulse.seattlechildrens.org/
Article Written By: KATHRYN MUELLER
Original Article Posted on: DECEMBER 30, 2020
Link to Original Article: https://pulse.seattlechildrens.org/dr-markus-boos-discusses-rashes-whats-normal-and-when-to-worry/
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Corpak Y-Adapter Repair Kit
Original Article Source Credits: Pediatric Home Service , https://www.pediatrichomeservice.com/
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://www.pediatrichomeservice.com/tips-how-tos/corpak-y-adapter-repair-kit/?play=1
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Happy New Year 2021!
We have been through a year full of unpleasant news, uncertainty, and instability. The good news is that it is over, and it is now behind us.
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AMT Clamp with ENFit Connectors
Original Article Source Credits: Pediatric Home Service , https://www.pediatrichomeservice.com/
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://www.pediatrichomeservice.com/tips-how-tos/amt-clamp-enfit-connectors/?play=1
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You are Doing What To My Sons Brain? Dystonia and Contemplating Deep Brain Stimulation
Original Article Source Credits: Complex Child , https://complexchild.org/
Article Written By: NA
Original Article Posted on: NA
Link to Original Article: https://complexchild.org/articles/2015-articles/august/dystonia-deep-brain/
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Out of Heartache, Hope Surfaces for Colton’s Metabolic Disorder
Original Article Source Credits: Seattle Children's , https://pulse.seattlechildrens.org/
Article Written By: LINDSAY KURS
Original Article Posted on: NOVEMBER 20, 2020
Link to Original Article: https://pulse.seattlechildrens.org/hope-surfaces-for-rare-metabolic-disorder-vlcad/
